We are a not-for-profit charity foundation 501(c)3 that is dedicated to helping families with children who are affected by any rare disease, genetic disorder, or medical condition that is hindering them from having a long full life.

Our goals are to create a support group in every city so that parents and family have somewhere to get support from. We hope to bring awareness of these terrible rare diseases to the medical communities who have hardly heard of them. We hope to help families with counseling, food, clothing, shelter, toys, and anything else that will make life for your loved one better. Provide yearly conferences so that all the families who have this and other diseases can come together learn more and not be alone. To fund research that will lead to cures for these diseases. Also provide a way for families and loved ones to feel as though they have help when no one else will help them.

Our goals and missions are carried out through community knowledge, family conferences, annual symposiums, fund raisers, support groups, etc.

With education of the disease we as a foundation are better able to bring support, help, research, funding, and hopefully a cure for this terrible disease. Although a treatment is available for this disease the treatment does not work for every child, and it does not cure the disease nor are any other treatments available but this one.

History of the Foundation

This foundation was started because the founder’s son has this disease. This foundation although inspired by Jamil is for every child who suffers from this or any medical condition that hinders the quality of life that every child deserves. Jamil was born on June 5, 2006 and remains to this day a true blessing, miracle, and inspiration to all.